That’s about the best I can muster right now. Whereas, on the steroids and Cayston, that would have been a low for me. Argh.

Most people go their entire life without knowing their FEV1. How lucky is that?

Now that I bought this little FEV1/6 meter, I know mine every day, and throughout each day.

It’s a love/hate relationship. Or at least one of happiness, or frustration, depending on the results. It’s the medical equivalent of a mood ring for me.

On the plus side: The tiny meter did help the doctors diagnose the TOBI podhaler bronchospasms, which were solved by eliminating the podhaler and adding oral steroids and Cayston.

The not-plus side: Over the past 3 weeks, since staring inhaled Tobra through the eFlow, my numbers continue to go down, but not as quickly as the podhaler.

So, the guessing game begins: Am I having bronchospasms? Is the Tobra not hitting the bugs as well? Would oral steroids work again? Is it allergies? Am I reacting to M&Ms or something else I’m eating?

What am I doing to cause the FEV1/6 drop?

It’s difficult to impossible to answer, as I’m not running my life to the standard required for a scientific experiment.  CF is so sophisticated I don’t know if it would matter if I did. Just one more reason to hate the disease.