What’s the right thing to do when old friends resurface?

This photo has nothing to do with this post. I'm tired and accidentally hit Publish. I like this photo because it looks like Cali is an android dog and ready to shoot her laser eyes. That's the best I have tonight. Why did I sign up for post a day 2011?

Everything happens in threes doesn’t it? Even when friends pop up after disappearing for a decade. For me, three did just this recently, in the span of a couple of months.

Before I married my wife, while I was in college, I rented a room from a very nice, highly intelligent woman who didn’t like living alone. We were friends and then I moved in. When I got hitched, I moved out, of course. And I haven’t spoked to her in . . . 11 years?

I picked up a message on our machine six weeks ago. So, I called her and we had a great conversation. She was glad I was still alive and surprised to find out we had a daughter and that I had something to do with it. Life is full of surprises, isn’t it?

So, we ended the conversation with her promising to call me back in a few weeks after she returned from a business trip to New York, and we’d all get together and she’d meet my daughter.

I haven’t heard back. I guess I satisfied her curiosity that I was still alive. Yes, even I’m surprised I’m alive but I’m not going to call her. It was clear she would contact me.

Experience grade: C-

A woman I worked with years ago – 10, 11 years ago – emailed me and said she’d be in town and asked if she could buy me dinner. Sure, though I hesitated because it meant leaving the house and wearing normal business clothes. But as it got closer, I looked forward to it.

We met for dinner. And it was nice. She’s doing work for the company I work for and I provided her with three pages of notes of ideas. And we relived war stories when we were on the road doing events and the long days standing on our feet.

Experience grade: A

My wife handed me a lime green envelope Monday. A male friend I haven’t seen for about, yes, wait for it, 10 or 11 years, sent me a snail-mail card with his contact information. And inside it he included a photo of an attractive asian woman standing next to him in a casino. I had to open it away from my wife’s curious eyes to make sure it wasn’t something R rated. It wasn’t.

So, what do I do? Do I contact my old friend? I like him. But he kind of disappeared. Why did he pop up now? Curiosity about what?

There are times when I search old friends online, which I did over the years for the friend who mailed me. However, I didn’t reach out to him. And I don’t know if I will now. It’s hard enough to see the friends we have.

I haven’t replied and I’m not sure I will.

Experience grade: TBD

Standing in line is agony

I’m not a patient person. It’s one of the reasons I was such a screw-up early in life, though one could argue I haven’t changed. I do feel I’m able to manage my impatience now, as an adult, and understand the value of working hard toward long-term goals.

But standing in line is still my Achilles heel and forces me into mental tailspins.

No, there are three registers and one line. What if someone makes a new line?

This weekend, at Barnes and Noble, I entered their line at the point the sign says to enter the line. But thanks to the incompetence of B&N line designers at that store, there is also an opening in the line at about the spot where you stand waiting to be called to the next cashier. So, as I walked closer to that point, a woman with two kids and man broke into the line, failing to see the beginning of the line or choosing not to walk that far to enter it.

As I was still waiting for my wife to pick out some new reading glasses, I said “go ahead” to the woman to take the first spot. I thought the man was with her and the kids. Then I noticed that he wasn’t and was on his own with a separate purchase, but had taken advantage of my hospitality to the woman.

And that’s my problem with lines, I find them very stressful because they force me to put my “asshole” hat on, to confront other people who are trying to scam to get ahead or are just plain clueless.

At B&N, I had pent-up anger left over from the day for reasons unknown, and had been a bit snippy with my wife. So I held in my need to have a deep conversation with this man and ask him what he was thinking, lest I blow up, get in fight and knock down rows of gift cards and discounted books, leading to my arrest and subsequent new profession making shivs from old nebulizers.

Lines make me feel like a chump. They are pianos being loaded to an 8th-floor apartment waiting to fall on my head and crush me.

Our next stop was World Market where a couple in their 30s walked up to the cashier ahead of me, but chose the wrong side, which happens there because the layout to pay is confusing. I’ve done it a few times myself.

Now I had a choice. I could have ducked in and been first to the register, having mastered the puzzle, or I could be a nice guy and wait for them to return from the dead-end they’d scurried into. I was a nice guy and let karma guide me by allowing them to come back around and go first.

But I paid a price for my niceness, or what I might argue to be wimpiness in the city of Los Angeles where we all want to kill each other with our cars.

I was punished when I saw the couple carrying a tall stack of dishes, each one having to be individually wrapped by the cashier. Edvard Munch, you were a genius, because The Scream was really about standing in line, wasn’t it?

More pain and suffering when the man tasted the sample chips, and liked them, doing his best to be cool for his lady and the cashier, who I’m positive wondered why anyone would spend a Saturday night at World Market, as she could attest to the torture of the place with its rugs “fresh off the boat” emitting an odd odor that made her dizzy and which she was sure wasn’t good for her health, made worse by the constant temptation of the food from countries she longed to visit but would never, but which she relived her pain by opening up cherry-gummy packages to see how many she could stuff in her mouth at one time – 16  – or eating a blood-orange chocolate bar one piece at a time by hiding it in her apron right next to a picture of her mother, whose house she would live in forever because no one would ever marry her if she didn’t find a way to lose the 35 pounds she had gained since she started sampling different foods from around the world with her five-finger discount.

Who was here first? I don't know. Did he just walk up? Hey, he's not with her. Line-cutting asshole.

So, did this dude pay for the chips when they were ringing up the endless stack of dishes? No, of course not. He decided to buy them after the first transaction was over, bringing my head close to the point of a total blood-swelling explosion. I watched the crumpled bills come out of his pocket one by one and his quest to pay with the exact amount of coins and the clock in my head slowed and I thought about paying for the chips to speed up the process or just smashing him across the face with my plastic bottle of wasabi mustard from Germany. But I didn’t.

When another employee, fresh from her nap in the stock room, opened another register I ran to it like a fire-starved pyro to a warehouse fire.

Then Sunday night we went to dinner in Topanga Canyon. At the restaurant, you stand in line and order dinner and drinks and they bring the food to the table. But you have to go to the bar to pick up your drinks. Madness at the bar, of course. No clearcut line, one bartender and every person for himself.

So I was patient, and a small line formed behind me. But other people came in and wedged forward, so I started moving forward, fighting for position.

After we received our drinks, a loud, attention-seeking woman who came into the line after us, made some passive-aggressive remark about “this guy (me) needing his drinks really bad” and that’s why she hadn’t been helped yet. I told her she came after us, but in the din of the restaurant and her own need for attention – this is, after all, a community of actors and artists – she didn’t hear me and I let it go.

I hate lines because they make deal with the clueless, the scammers, and the idiots in life who cut you off on the freeway then flip you off. They’re the people you can’t reason with, who see life in a way the rest of us can’t. The sky is blue, but they’ll argue it’s raining and believe it, or when caught in a lie will lie to cover the lie.

I like places with numbers. I take one and roam around. I don’t have to worry about jockeying for position or monitoring the line for anyone who tries to cut ahead. I just have to watch the display and listen for my number to be called.

And with numbers I get to go ahead of the people I see waiting with frustrated faces because they just F-1’d their Land Rover through traffic, making over 50 lane changes, to get to the grocery store. And they walked in knowing they were more important than anyone else there, and smarter and wealthier. But with the number system there was no way they could push forward, intimidate anyone or work their way to the front of the line ahead of the guy in dirty shorts and a ratty t-shirt smelling like he only takes showers every four days or so – what the fuck is he doing in a grocery store like this ahead of me, Mr. Range Rover thinks.

And I look back as I place my number on the counter and grin, ordering the last of Tuesday’s night’s delicious and highly sought after beef stew. Sorry about your bad luck, number 13,  I say and walk out into a world without order.

How I spent (and didn’t spend) my summer vacation

I didn’t spend summer in the hospital. [Fox applauds, then passes out.]

I feel like I won the lottery by not going in, though the pattern for me has long been one without summer hospital stays. With falling leaves, colds and other viruses on the way, you can bet that I’ll soon be returning to hell.

Ebony and Ivory, living in perfect harmony on the beach

I didn’t spend June, July or August coughing up blood, though summer hasn’t officially ended.

And if you’re a betting man or woman, I’d bet on the blood thanks to the blood thinning shots I’m stabbing into my McGriddle-fattened six-pack twice a day. And I’ve just tempted fate by mentioning it on the blog, which means I’ll probably be in the hospital coughing up blood within the next two or three days.

I did spend June working on what the Donald would call a “super-big, important, super-large” project at work. It was a success and once again I proved it’s better to be lucky than good, and assembling a talented team always makes one look better than they truly are. Go Team Unknown.

We did spend the summer with a new puppy – a goofy, mischievous, shower-squeegee stealing, whining, scared of her own shadow, mystery of a black lab that I wanted to give away, but was outvoted by my wife and daughter, who are both attached to the black shadow-thief. (That’s all I can write about the dog, otherwise my friend @onlyz tunes out at this point and starts to read the back of the vegan muffin package.)

I didn’t spend this summer blogging or watching TV, but I did spend it reading. I read over 8,000 pages and enjoyed every minute, staying up late and making the most of when time takes its mandated-by-law break.

Malibu coastline on a nice summer day.

I did spend the hot months milking every bit of fun I could. I filled every weekend with an activity and dragged my wife and daughter to all kinds of places. From the American Idol concert, to the beach, the circus, a dog agility trial and canyon roads we’d never driven. We didn’t take a summer trip this year thanks to the blood-thinner shots, but we still had a great time and spoiled ourselves by eating dinner at restaurants more often.

The end of a great concert at Theatricum in Topanga. Check out a play here if you're in Los Angeles.

Monday, Labor Day, we ended the “holiday to holiday” summer with the annual benefit concert at Theatricum in Topanga. What an amazing afternoon filled with talented singers singing Burt Bacharach songs. A great way to finish my favorite season of the year watching some of Los Angeles’s most talented musicians, like Inara George and Sara Melson, play music for two hours.

So, I’m happy with the job I did having fun this summer. I cannot guarantee I’ll see another one. I hope I do, but it’s not written in stone that I will.

Now it’s time to focus on autumn and the Denver Broncos winning and me staying out of hell and not catching colds or the flu or coughing up blood. I’m optimistic, but know sometimes there is nothing I can do but ride out ill-timed surprises.

Here’s to a healthy fall and winter to all.

Game of Thrones – Finished!

I did it. I finished all five books of Games of Thrones. Close to 5,000 pages. Thank you, Obsessive Compulsive Disorder, you served me well.

I don't usually read this genre but I needed to escape for awhile and this was the world I visited.

My adventure began when I watched the HBO series and wanted to know what happened after the final episode of season 1. And since I have my doubts I’ll live another five years to see the episodes tell the story, I downloaded the Kindle versions.

And oh, what a series. Books 1 -3, amazing. Book 4, good. And book 5, very good and better than the Amazon reviews led me to believe.

But there’s a catch. The story isn’t over. 5,000 pages and it’s still going – at its own careful pace, which is why some reviewers dinged it. Worst of all, it was six years between the last two books. I can’t wait that long for the next book. I may not have another six years.

George R. R. Martin, if you read this, get your writing groove on, please. I need to know what happens. Call me. I have some ideas. I’ll help you write some chapters. Hurry, before this blood clot in my neck gets angrier.

Valar Morghulis, but not until I’ve read book six.

Mother’s Day is not just for Moms

As the event planner for our family, I scheduled quite the weekend of fun. I made sure I did what I wanted to do and brought my wife – the mother of our child – and said child along for the ride.

Yes, I am the world’s least thoughtful husband. I stopped just short of buying myself a gift.

At one point, my daughter thought it hilarious, in her 9-year-old way, to state all of the work my wife does and compare it to how little I do. This wasn’t on my list of events for the weekend. But that didn’t stop her from delivering this bonus gift to her mom, at my expense. Ouch.

This is what you'd call industrial size fun if you were into washing clothes. Is anyone into washing clothes? Wouldn't it be better if we wore plastic and hosed each off? Creative Commons: Cherrycoke

Then my wife joined my flogging and asked me if I ever did laundry before we met. I must have. But to tell the truth, I don’t remember how I did it.

I don’t think I can operate our current washing machine. I’d have to stare at it and hope my Jedi powers would jump start it. But I do remember putting quarters in the machines I once used. Quarters in, wash. Quarters in, dry. Walk away without a date.

I can say this: I hated washing clothes.

Anyway, that was a long time ago. I’m sure I’ll get another beating on Father’s Day. But, the male lion did defend himself with the building of our bathroom, a deck, the furnishing of the house, and the planning of this weekend, which without me would have left the two ladies in my life sitting around playing Uno and watching HGTV – all in the house that I built with my bare hands while wearing a manly tool belt and oozing a certain man musk that attracted every feral cat in the neighborhood.

I saved my wife and daughter from the mundane and episodes of “House Hunters.” Growl. Now let me take my 16-hour nap while you hunt for my dinner.

Every angle of this building looks cool

The fun started Saturday with “The Songs of Patsy Cline” at the Walt Disney Concert Hall. We’re not big fans of Patsy Cline songs, but we were of the talent singing the songs. And, having never been to the amazing hall, an attraction in itself,  I decided it would be a fun thing to do on the evening prior to Mother’s Day.

Come along, ladies, you’re my invited guests.

Five jammed lanes of L.A. traffic killed our plans to eat dinner in a historic downtown firehouse, now transformed into a restaurant. So, we improvised and ate chicken curry, peanut butter and jelly, and saltwater taffy at the concert hall cafe.

Oh, and what a building it is. It lived up to every photo I’ve seen of it. And the inside – equally jaw-dropping.

The concert delivered voices best appreciated in person. Inara George of Bird and the Bee fame and The Living Sisters hosted and brought tears to my eyes with their harmonies. Guest stars included John C. Reilly, the actor, who is an excellent performer, John Doe of X fame, who my wife couldn’t stop talking about after the concert, as if he would be a better husband than I, because as we all know, rock stars make great husbands, and Zooey Deschanel, who my daughter knew of from Elf, the movie.

I had to take a picture of the empty stage because I wasn't allowed to take a picture of the performers. No, one wouldn't want a picture promoting them on a blog now, would they?

Sunday included a trip to our favorite local secret hideout of talent – Theatricum Botanicum. I used the term “secret” because this outdoor theater is one of the best values in L.A., and showcases incredible performers.

We watched Momentum Place presented by Take Note! and Lexi Pearl. The show  mixed acrobatics with comedy and the reading of the written word. It was fantastic.

The highlight for us was a comedian/juggler/contortionist named Scot Nery. Here’s his web site: http://jugglegood.com/#home  If you ever get a chance to see him, do it. He put on one of the funniest “clean” shows I’ve ever watched.

I’m grateful to have weekends like this one, as we made the most of the two days we had. I only wish they weren’t so fleeting.

I can’t wait to see what my wife plans for Father’s Day. Probably a mani-pedi, or something delicious like watching reruns of Sex and the City, or talking about our feelings.

Payback can be cruel.

Letter To God, 042411

Bubble in the sky, 2011

Dear God,

I don’t believe in you. But I believe in the right for others to believe in you. But I don’t. Believe in you.

My wife and daughter do, however, believe in you. So, for their sake, I’m hoping I’m wrong and you do exist. I want happiness for them more than anything else I can think of. So, shoot a lighting bolt down from an empty sky and turn me to dust. And for them – protect, embrace, hug.

When I realized what this disease was about, and the lives and suffering it has caused, I knew I could not believe in a god that created cystic fibrosis.

I must have done something wrong in a previous life. I understand.

I am lucky. I understand.

I have everything I need. I understand.

I am so close to the perfect life. I understand the asterisk.

What I don’t understand is how you could design a disease that harms children. That takes them away from their parents. That makes them suffer so much. You are no god of mine.

You owe us a cure, or a remedy. A lifespan “increaser.” A stress and exacerbation reducer. And you owe it to us now. I have a feeling I won’t be on the list for it after this blog post, but I can live with your decision, or maybe I won’t. But if you give it to everyone else, good.

I suggest you send a spark to a scientist or doctor or mother or father or brother or sister, or anyone who will take that spark and put in a pill or nebulizer and make magic happen. Magic, magic, magic – it’s the least you can do.

If I read another blog post where an innocent baby, child or young adult has spent a night in the hospital because of this disease, I’m going to transform into a Phoenix and scorch the heavens until they are clean of anyone at your dinner table who thought CF was a good idea. It wasn’t. It’s not. Take it back.

It’s your turn to make it right for those still here. It’s too late to help the others. You’ll have to answer to them in person one day. And I hope you have a good excuse. You’re going to need it.

Please protect those who fight this disease, and the ones who love them. They demonstrate true courage and bravery every minute of every day, and never make the papers with “Hero” next to their names. They should. I hope you have a good reward for them in the end.

I expect mine will be a pile of coal, a shovel, and a furnace.

UC

No one lives forever

Par-a-noia strikes deep
into your life it will creep
it starts when you’re always afraid
step out of line the man come and take you away
Buffalo Springfield

I look better in black and white

I have a plane reservation for Monday. I don’t remember how long it’s been since I’ve flown. A year? Over a year?

Travel with cystic fibrosis hasn’t always been kind to me – hemoptysis over the Atlantic Ocean, German hospital; collapsed lung over Texas, chest tube and chest tube redux; and half-a-dozen or so travel episodes of coughing up blood, even in Hawaii – how screwed up is that?

And recently, I’ve had two embolizations and unpredictable moments of bleeding, sometimes due to exertion.

So, the thought of getting on a plane Monday scares me. It’s fear, pure, simple.

It bothers me to realize I’m afraid of something – deeply afraid.

Bad things happen when I travel.

If my lung bleeds on the plane, how much will it bleed? Will I be able to walk off the plane? Or, will I be carted through the airport to a waiting ambulance, my shirt Rorschach-red, people staring?

My crows fly wild, agitated, noisy.

The icing on the cake of indecision is the head cold I’ve been fighting with nasel irrigation, tea, vitamin D and M&Ms. The decision may not be mine to make after all. The cold may force me to stay home in what I like to call a “career-limiting move,” as if I had a career. But I have job, with health insurance. I’d like to keep it.

There is also the voice inside I like to call the “Train-wreck Watcher.” It gives me courage to go, to get on the plane, and see what madness might play out – to witness a possible derailment: a hospital in NJ; coughing up blood in front of my co-workers; or dealing with breath-taking stress and feeling trapped.

Train-wreck Watcher says: Is there anything the disease can throw at you that you cannot manage?

I don’t know. Is there? Roll the dice, sissy boy. No one lives forever.

Letter to my daughter, 03/22/11

Dearest Daughter,

We’ve spent two days together while Mommy is away on business. Thanks for making my life easy, so far. But there’s always tomorrow to change course and wake up in a foul mood and fuss about putting your shoes on. We’re not home free yet.

I do, my wonderful daughter, need to share an observation with you I noticed this week: You’re Fox’s child, not mine. Yes – you are.

This became very clear to me the first morning when I had an epiphany and saw your fox tail showing.

Here’s how I knew: How many years has Mommy brought you a heated blanket in the morning, carried you to breakfast, and sat you on her lap feeding you?

Hmm, I wonder?

Then, when she’s away for a few days, and I’m here, you manage to get up without an alarm clock, put together your own breakfast, eat it in record speed, and have 30 minutes to get dressed and ask if you can play Pokemon.

And no blanket or sleepy-head look? Very interesting indeed.

You see, I now know your secret – you bamboozled your mother! All these years and you kept the act up. Well done, my child. Well played, young lady. Well. Played.

I will keep your wicked little secret when Mommy gets back, and let you have your pack-mule moment of being carried to the table. It makes your mother happy, though she’s having a hard time carrying you now. How old will you be when you exceed the maximum weight limit for that ride? I’m sure it will be sad for all of us.

From this point forward, each time I see her lugging you like a heavy bag of groceries, I’m going to have a huge smile on my face watching you, Baby Fox. Yes, you.

Enjoy your trick, honey, because before you know it, you’ll be carrying your own daughter to breakfast wondering when she got so heavy, and wasn’t she just a baby a few days ago, and where did the time go?

Where did it go?

And you’ll remember, at that very moment, what I once told you in a blog post – you blinked.

With all my love,

Daddy

Follow-up to yesterday’s post

When I started this blog, my goal was to be as frank as possible. To lay it all out, take risks, and leave a record for my family and those who are kind enough to read it. Though it’s challenging to judge for myself how I did, I do think I came close – with an asterisk.

When year two came around, I knew I’d been holding back posts about thoughts that screw me on certain days, and have since I was 16. That’s because it’s hard to blog about cystic fibrosis and not take the whole of the community into mind and the toll the disease has taken on younger and better people than I.  It doesn’t feel right to talk of certain feelings with these special individuals and families in mind, especially when I’m the luckiest of the lucky.

But that doesn’t make certain thoughts go away or not part of my life. Yes, I’m lucky to have so much. I think of that every day, but my mind still plays tricks on me. CF has taken its toll on me over the years – the hospitalizations, the fear, the number of times I have coughed up blood. These events have damaged my brain wiring.

I think about escaping sometimes. Luckily for me, I have not chosen this path, as I don’t like pain, though I have a tolerance for it in the hospital. But I do live with the warped thinking. It would be disingenuous for me not to mention these thoughts occasionally. I’m hoping that by doing so I can reduce their power. That’s my hope. We’ll see. Feel free to skip these posts. I can tell you that the post that follows will usually be happier, or angrier in a fox-like way.

Sometimes, I fall off the Happy Positive-Thoughts Wagon and it takes me a day to get back on. But I do get back on.

Stay sane and patient, please.

When my mind goes south

[Adult language and themes]

I’ve been trying to figure out what happens when I have bad days and feel like ending it. I wrote the camel story the other day because it described that it’s not the single straw but the load that breaks my back. My doctor once described CF as carrying a full bucket each day and it only takes one or two added drops to cause it to overflow. Overflowing is bad. That’s when I end up in the ER because I think I’m having a heart attack.

My thought process can be positive six days of the week and “bam,” day seven arrives and everything goes south in a hurry when a couple curve balls come my way. I realize I’m not thinking straight, but I feel trapped. And only one solution sounds reasonable as an escape. I know I’m screwed up, but I can’t do anything about it.

Here’s a sample from the other day.

Blood streaks. Fuck me. Not good. Where will this lead? Hospital? No. I don’t want to go in again. I can’t go in again. I can’t do it. I can’t take another trip there. I have a ton of work right now and important deadlines to meet. I don’t want to talk to HR again or call my bosses and explain.

I should end it.

I have to fly to New Jersey at the end of March. I haven’t flown in almost a year. When I walk through the airport, I’ll be carrying heavy bags and exerting. Exertion equals blood. I don’t want to cough up blood in the terminal. I don’t want to cough up blood on an airplane again. What hospital will I go to in New Jersey? I can’t spend two weeks there on IVs. What if I need another embolization?

I should put an end to all of this.

An email saying I have to go to Detroit for training later this year. De-fucking-troit. No. Another plane trip. I can’t fly. I don’t know that city or anyone in it. What if I cough up blood there and have to go to the hospital? Two weeks in Detroit. I don’t want to go on that trip. How can I get out of it? How many special favors do I require at work compared to every one else. Fuck CF.

I’m not sure it’s worth going on.

I have a growth near my ass. How funny is that. I won’t mention this on my blog. Too embarrassing. Great. What doctor do I see about this? I’ll start with the skin doctor. Seems like a fatty tissue. Gross. I think it’s been there awhile. It it was cancer, I’d be dead by now wouldn’t I? Have it checked out. I hope it’s not serious, but I’ll ask the nurse to leave the room when the doctor looks at it. I’ll have to put one leg up on the chair. Embarrassing.

I can’t do this anymore.

My wife is going on a business trip for three days. I told her to go, but I wish she wasn’t. I have to take care of our daughter. That’s a lot of work. How will I do it? It’s the week before my deadlines. What if I cough up blood while my wife is gone? How fast can she fly back? Who will my daughter stay with? Probably one of our friends. How many days could I make it coughing up blood and not going in? The hair brushing and homework and all the stuff my wife does. I don’t know if I can do it.

I should just end it now. That’s the best solution. I can’t do all of this. I just can’t do it anymore. I’m embarrassed. It’s just not worth it anymore. I don’t want to fail.

So, that’s how it goes. At the time it happens, it’s serious, a wave that comes over me as the load becomes too heavy to carry. And I can’t break away from the thought process. It is a feeling of being trapped, and I have to escape. Then, later that day, I feel okay. Sometimes it takes a Xanax or two. And it’s ironic because every other day I’m worried about losing my life. This, however, I do know: It’s hard to be this screwed up and know you are.