It would have been nice had someone explained to me when I was young how difficult it is to be an adult. It’s not a cakewalk. Nor is every day a day at the beach. I probably wouldn’t have listened, or cared, but it still would have been nice. All those milestones we dream of as children, 16, 18, and 21, blow by. Then we become adults and can do anything we want, including wishing we were 16 again, but smarter.
Okay, moaning over. It’s just one of those days. Let me explain.
I spent two days writing a post about what happened over Memorial Day weekend with a neighbor. I would love to publish it, but I don’t know if I can make it plain enough to avoid all legal scrutiny and not get in hot water. In a nutshell, a neighbor who has caused the neighborhood and my family great stress went to jail this weekend. I and another neighbor followed the instructions of the police the last time they were here: call if she shows up again. We just wanted her out of the neighborhood. The going to jail part was a surprise and not intended. Now I know why some people don’t get involved. It’s easier and requires less effort and stress.
And if you do get involved, it’s easy to muck it up and experience more stress (I know this firsthand).
I’ve been on the phone with a lawyer about my options to sue since then, and I’ve spoken to a police officer about everything happening in the neighborhood for the past year. My wife and I have had stressful conversations about the situation. Unfortunately, there’s no manual on how to protect your family from people with drug habits.
But there should be.
I went to clinic today and my PFTs haven’t gone back to baseline. Not looking good. So, maybe it’s time for IVs to see if we can nudge them back.
When the nurse was reviewing my records, the conversation went like this: Have you made an appointment with the sinus doctor? No. Have you scheduled a sleep study? No. Have you scheduled a bone scan? No. An oral glucose test? No. And so on.
Working 50 hours a week makes it difficult to spend my weeks enduring medical tests.
A new doctor untrained in the mysteries of CF walked in and surprised me. I’m picky about my doctors and my time. I knew in the initial 30 seconds based on the way she entered, spoke, her mannerisms, and plopping herself on the first chair she could find that I had nothing to say to her. And I told her that, then asked for the regular doc. Nothing personal, I said, as she left. One of the regular doctors I like entered the room and it rained happiness and Skittles. I only had to use a third of the words and effort with her compared to the doctor I booted.
A similar situation happened with a temporary member of the staff. I answered her questions as quickly as I could and got her out of the room as fast as possible. But the visit wore me out, as the longer I’m there, the more the work feels like it’s piling up.
So, all of this and more have added up to remind me why some must turn to drugs in life. The future overwhelms. How much of what we worry about will or won’t happen? I wish I knew.
I only recently figured out that of the about 100% of things I worry about only 5% of it actually happens and of that 5% that is bad about 3.5% even though bad at the time turns out later to be good so now that leaves (if I’m doing my Math correctly at this late hour – lol) stay with me now – that leaves only 1.5% bad! Even I can handle 1.5% bad – so now I only worry 1.5% of what I used to… 🙂
Love your posts – keep them coming please.
Your Philly Friend,
Well said. I agree. Unfortunately, sometimes, like an ocean wave, I get knocked on my ass by worry.
It’s nice to hear from you. I hope you are doing well. Thanks for the comment and nice words. Much appreciated, as always.
I relate 100% to the ocean waves of worry. I’m trying, really trying not to let the ocean knock me on my ass either, but it’s a struggle.
And I love your CF clinic visit synopsis… were you a fly on the wall at our visits? Because I feel like you just narrated us.
Sounds like you have similar experiences with doctors. I can’t waste my time training non-CF doctors.