The CF Foundation states that the median age for CF is over 37. They and thousands of volunteers and doctors and CFers and CF families have worked very hard to raise that number. Every one of these individuals deserves major kudos, including anyone who has contributed financially to fighting CF.
Now here’s my “not so deep thought of the day”: What would the median age be without the Internet?
Would it still be over 37 years?
Think about how complex this disease is and how opinions vary on treating it. Think about how important sharing information is in fighting CF. Think about how comforting it is to communicate with others who have this isolating disease.
Without the Internet would we know the best order of nebs? The best CF Centers? The best alternative therapies?
Here’s my question of the day: Have we realized the full potential of the Internet in fighting CF?
I don’t think we have.
I believe the Internet will help us fight this disease in new and creative ways we haven’t yet imagined, or yet implemented. And I wonder what they will be. I wonder. I truly do.