I miss my night nurses who sneak in under cover of the hallway lighting and administer my evening IV doses, all while I sleep away, no break in my warped hospital dreams. Last night, with no nurse to save me, I turned off my 4 a.m. wake up call and went back to bed, screwing up my antibiotic schedule for the day.
Mycin, the IV-antibiotic groundhog, saw his shadow at my post-hospital appointment this week, and I’m continuing home IVs for 7 more days. Oh, yay. Seven more days of no shower and limited sleep.
Yo, chump, you get 7 more days of IV antibiotics not because I saw my shadow but because I saw your ugly mug. © Vladimir Melnik – Fotolia.com
I must give a shout out to the CF Team. They’re fantastic and a bright spot of humanity. They’re people who care about others in a world full of . . . well, fill in the blank with your own opinion. It takes a great team to survive this disease.
My O2 isn’t back to normal. And I have a bad attitude, along with a craving for Jersey Mike’s meatball & cheese sub sandwiches, which I’ve eaten almost every day since coming home.
I’m back at work, and grumpy about it. If a hospital stay, daily fevers and the continuing erosion of my lung function shine a revealing light on anything, it’s the bullshit of the trivial aspects of my job. The politics, the positioning, the posturing, the game, and most importantly, the work that does and doesn’t matter. I don’t know how much more I can take of feeling like I’m not doing something valuable with my remaining time. Designing PowerPoint presentations makes me want to stand in front of a MetroRail train.
I know it’s a cliché, but some days, “one day at a time,” really does save my ass. It’s my immediate ticket to not thinking about all the bad things that can and may happen. It works.
One day at a time. One day at a time. One day at a time.
The Unknown Cystic 
Dear Madman of LAShire,
Bummer that you’re got another week of IV’s! I hope they do the trick.
“One day at a time” maybe a cliché to some people but it’s been keeping me going for the last 22 years, and of course FUCF!
Sir Sean
Dear madman of LAShire,
It’s a bummer that you’ve got another week of IV’s but I hope they do the trick.
Some people might think “One day at a time” is a cliché but it’s something that I’ve lived by for 22 years now and of course FUCF!!
Sir Sean
John,
Don’t know what to say except “sorry” for the crap you’re feeling and “one day at a time” is good strategy for getting through this. This too shall pass my friend.
Wishing you the very best.
I’m so sorry you’ve had such a rough time of it. “One day at a time” saves me all the time.
Hang in there Unknown. I love reading your posts. Usually they leave me laughing, but this one breaks my heart. I understand completely. This too will pass.
Dam IV groundhog! Sorry You have another week of IV’s and have to get back to work………Hugs
Praying for you!! 🙂
That sucks. I know what you mean. I was in the hospital back-to-back in Oct. Had to take 2 months of Med Leave from work, and I had to withdraw from college. But like you say: One day at a time. I’ve worked my lungs up a bit. I get to go back to work in a few weeks AND hopefully one day soon I can re-enroll in Grad School. I love the one day at a time saying and repeat it a lot. It really helps. Sorry how it all is going for you, another saying I repeat : It all has to get better eventually and this will pass. Good luck, hope it all turns out good. 🙂 your fellow cf blogger, Cheriz (www.cheriz.org)
Cheriz,
Back to back is the worst. Sorry to hear that. Glad to hear you’ll be back to work soon. Hope Grad school follows.
Thanks for the visit and two comments.
Happy Holidays,
UC