Most people go their entire life without knowing their FEV1. How lucky is that?
Now that I bought this little FEV1/6 meter, I know mine every day, and throughout each day.
It’s a love/hate relationship. Or at least one of happiness, or frustration, depending on the results. It’s the medical equivalent of a mood ring for me.
On the plus side: The tiny meter did help the doctors diagnose the TOBI podhaler bronchospasms, which were solved by eliminating the podhaler and adding oral steroids and Cayston.
The not-plus side: Over the past 3 weeks, since staring inhaled Tobra through the eFlow, my numbers continue to go down, but not as quickly as the podhaler.
So, the guessing game begins: Am I having bronchospasms? Is the Tobra not hitting the bugs as well? Would oral steroids work again? Is it allergies? Am I reacting to M&Ms or something else I’m eating?
What am I doing to cause the FEV1/6 drop?
It’s difficult to impossible to answer, as I’m not running my life to the standard required for a scientific experiment. CF is so sophisticated I don’t know if it would matter if I did. Just one more reason to hate the disease.