Let’s have a national cystic fibrosis awareness day in which everyone fighting this disease wears a special CF T-shirt. If the idea plays out the way I think it might, one would wear a special CF T-shirt in public on a certain day and randomly see others wearing the same shirt. It’s all about that moment of solidarity with others in the fight who might cross paths without ever being aware of each other.
How many of us out there are involved in the fight against CF?
It would be fun to search for others wearing the shirt. We could post pictures online of some chance encounters. Of course, we might not be able to meet each other up close due to germs, but it would still be nice to know how many others are out there on a specified day.
It would take the help of the CF Foundation and other excellent organizations like sharktank.org, cysticlife.org, BEF.org and cysticfibrosis.com to pull off a coordinated effort like this. CF bloggers could pitch in. Even CF clinics could join in the fun and promote the day. Everyone could come together for this one special promotion.
Someone would have to sell the limited edition shirt and everyone would have to communicate the day to wear the t-shirt, which would be best in summer (t-shirt weather). The nice thing about t-shirts is that they’re not that expensive. And all profits could go to the Foundation, sharktank, cysticlife, cysticfibrosis.com or whoever sells the shirts. I’d order at least three for my family and more for friends. The shirt would have to be colorful – yellow or orange or lime green. It needs to stand out.
Who knows what publicity it might generate with news media?
In my crazy mind it would be similar to something the artist Christo does when he wraps a bridge in colorful fabric or places gates in Central Park. It would be a living, breathing, moving display of the fight against cystic fibrosis. Oh, and let’s not forget our friends in England, Canada and other countries. We are one in the fight. And on one summer day in 2011, let’s see how large our army is. Am I crazy? Don’t answer that.
I have tshirts for the CF walk every year. This year I’m making new ones – maybe i’ll send you one… and get your feedback.
I think I remember seeing the t-shirt on your blog. Very nice. Pls send a jpeg when you get the new one finished.
I like it! Really, I do. I’m not good at the whole “planning” thing, but I’d love to participate and spread the word!
Jenny,
Thanks. I think it would be cool. I wonder how many are out there fighting the fight.
John
Sounds like a good idea. Think you will have trouble with the CF Foundation wanting to help coordinate during any other time during the CF Awareness week in May.
Melissa,
I agree with you. Thanks for the information. I forgot about that week. One day in the week would be perfect.
John
I think it would work even if there wasn’t ONE shirt. If people wore ANY shirt that was explicitely to fight CF, it would work! That would be great so that those who didn’t have time to buy THE SHIRT could still participate! You are awesome. Pick a date!!
It might work with other shirts. Still, in my warped mind I pictured one large wave of color taking over the country. Thanks for the visit and comment. I’ve been following your exercise numbers. Keep it up.
I like the idea. I’ve searched everywhere for a cool CF tee. I finally found one online & ordered from the UK! Unfortunately, a ladies size small on the continent would fit a six-year-child in the US. It says, “Cystic Fibrosis. Get it off your chest. “
I’ve heard of that shirt. The woman who created the idea in the UK is on Twitter. She asks celebrities to wear the shirt and take a picture of themselves with it on. It’s very cool that you ordered one. I wish you the best in 2011.
I LOVE this idea! We should spread it on facebook and twitter and cysticfibrosis.com. This could definitely work…though I dont look good in lime or yellow….I think something like purple, it is afterall the color for CF awareness.
Anna,
You are so right about purple being the color of the foundation. How did I forget that? I guess I was thinking that it had to be a color that really stood out, but I think purple would work well, too. Thanks for sharing your advice. Much appreciated.
John
I really like this idea, it would be great to spread awareness. My little sister has CF and we participate in the walk every year w/ our own team. Every year the team keeps on getting bigger. It would be great to have t-shirts for those who are fighting CF, but it would also be great to have ones for family, friends and people supporting the fight against CF as well. I would personally be very interested in buying some, I hope it works out. (:
I’m going to be selling CF t-shirts next week!!!