The above video includes one of my favorite songs. If you like music while you read, please press play.
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To everyone who has visited and read my posts and the comments, I have the following words for you:
Thank you. Thank you, so much.
I started this blog to leave a record for my daughter detailing my fight against cystic fibrosis. It has evolved into something more.
Much younger here, she's everything to us.
I say this from my heart: this blog became better than I ever imagined thanks to you, my friends.
With your help, it has evolved into something I never expected – I got more back than I put in.
When I felt like quitting the blog, you kept me going. During my recent jail stay, you gave me the strength to find the humor to fight CF – to say, I may bend, but I will not break from CF’s cheap tricks and mind games.
And, most importantly, the lesson my daughter will take away from this blog will be greater than my words alone.
It will be a message of hope delivered by others.
My daughter will read the comments and learn more about the people who took the time to write them. She will discover that the heart of the blog lives there beyond my individual thoughts. It is greater than I, and tells the following story: one cannot fight cystic fibrosis alone – it takes a team of the finest minds and hearts, and the courage they share, to defeat this brutal, complicated disease.
I have work commitments this week. It’s the perfect opportunity to take a week off from writing and reflect on the next 100 posts. It’s my hope they’ll be even more rewarding and that together we will find new strength to crush CF until its life blood drains into the gutter, never to be heard from again. Hope is on the way and it carries a very big flail.
I reflected on the 99 previous posts that Fox and I wrote and tried to identify my favorite. One post kept coming to mind. And of course, it features you know who – she of Jimmy Choo shoes, and Pink Bunnies and all things soft – she with the ability to transform darkness to light, words to sweet-smelling daisies, and toads to handsome doctors – My friend, Cystic Gal. Here’s the link:
https://unknowncystic.wordpress.com/2010/04/23/cf-blog-throwdown-dude-versus-the-lady/
Stay well – Fight hard. See you in a week.
p.s. If you’re wondering about Fox, he is in a Las Vegas jail right now. Last night, at the Hard Rock Hotel, he punched The Who’s Roger Daltrey, who according to Fox, made a pass at Ginger. I think Fox can use a few days in the hole to reflect on his actions before I bail him out, don’t you?
The Unknown Cystic 
Awwwwww, shucks. We will certainly miss you this week- but when you come back- first order of business. We need pictures of Ginger, to answer the #1 question on Fox-fans minds- is ginger both a “fox” and also a fox? Or is she a foxy non-fox? or a not-foxy fox? See where I’m going with this?
Have a good week at work,
but don’t work too hard,
because nobody ever says,
work like it’s your last.
party,
“CG out!”
CG,
I have never met Ginger. I know she is a nurse. You ask very good questions. I’m sure over time, there will be answers.
🙂 to your work comment.
UC
🙂
You beat me by four or five posts. Congrats, and see you in a week.
I didn’t beat you because it’s not a competition. I will happily hand over any trophy to you. 🙂
Beat in terms of “prior to.”
a whole week?! *tears and pouty face* ahhh well, I guess we all need to take a moment….. Congrats on your 100th post, try not to work too hard. No quips or quick witted comments tonight, Im at work, however I just HAD to tear away for a moment to see what UC had to say 🙂 enjoy your time! much love!
Juli,
Thank you for the kind words. I have a quite a week coming up. Lots of bosses coming to town. Sunday best, that type of thing. Thanks for checking in at work. I hope no patients were harmed while you did that. 🙂
Best to you this week.
John
of course not….they were probably happy not to have to see me for a bit 😉 lol! You’re going to have a great week! Knock ’em dead!
the “throwdown” episode was my first time to read your blog. it was greatness!!
Well, thank you. Clearly, I stomped CysticGal’s behind with my side of the story. 🙂
Thank You for sharing Your cystic story. I’m just finishing up 3 1/2 weeks on home IV’s. Thank You for giving me something that makes me smile and my girlfriend laugh.
Colin
PS I love Ringo but he can’t sing
CDS,
Hey, be nice to Ringo. He gave it his best. But I agree that they only let him touch the mike on rare occasions for a reason.
Thanks for the very nice compliment.
I hope you’re feeling better now that you’re finishing up. I usually do at the end of IVs, but sometimes there is a delayed reaction for my lung function to get better.
UC
Good luck this week with work, don’t know what I’m going to do this week while I’m on Californian time? Tell Fox to party on and stay out of your way because I don’t think the bosses will appreciate him.
Take it easy dude.
Sean
Thanks, Sean. Fox is still in jail. I’ll send the bail money later this week. Have a good week.
Also sad that we’ll have a quiet week, but I totally understand that work commitments are #1. Mine have been doing that for the past two weeks and I’ve been neglecting my blog in the worst way.
BG,
Thank you. Time goes by so quickly and work does get in the way of our fun, doesn’t it? I’ll check in on your blog and see if you’ve updated it.
thanks for the comment and visit.
UC